BRUTAL FACTS AND MYTHS ABOUT LYME DISEASE
In my personal view supported by web links below - the only test available at NHS - ELISA for the detection of Lyme Disease has the possible detection rate as low as 40% or possibly even less. There is no proof on how accurate this test actually is.
After having two independent positive results with use of bioresonance (not a scientific way to prove it according to NHS) I demanded from NHS to conduct an alternative test (Western Blot, or any other listed below). After my GP's call to the Norwich Hospital Lab I was advise ELISA was the only test available at NHS and that to have Western Blot done was not feasible even after presenting NHS with two independent bioresonance test results. Two other tests - PCR and LTT used for testing for Lyme were not heard off by Norwich Hospital Laboratory - also confirmed by my GP.
SO - ONCE YOUR BLOOD TEST COMES BACK NEGATIVE YOU ARE ON YOUR OWN.
As a rule - you must be diagnosed / labelled with something, so it basically means being treated for a different neurological condition or other medical conditions and awaiting the destiny of meeting the Creator in a slow and agonising process.
Most know that Lyme Disease is a very serious illness so I believe no further comment is required. However for many of those that you know who think it's just a flu-like disease here are some important points:
- Other blood tests - Western Blot, PCR (Polymer Chain Reaction), LTT (Lymphocyte Transformation Test) are in my view probably as accurate as 70%, 85% and 90% respectively. So there is still a large margin of error. The reason - there are some 300 strains of Lyme disease and the laboratory testing for Lyme uses only several of the most common stains of Lyme spirochetes (mostly local to where you live) in detecting antibodies in your blood samples. Also - your body my have no antibodies in your blood at the time of sampling mainly due to Lyme being "buried" deeper in your body tissue - not present in your blood stream. So - this is the reason why the blood tests fail this often.There are volumes of data and internet sources where accuracy levels of above tests are often disputed - so from my point of view I need to make all reading these statistics aware that the numbers presented above are subjective and can differ from true. By doing your own research you should make your own evaluations.
- The Chronic Lyme Disease symptoms on NHS guidelines cover only about 35 - 45% of them depending how you group them. This is very distressing and, had I stopped reading about Lyme at NHS web site, I would've been homeless by now. I was hugely shocked discovering the facts about Chronic Lyme once I started reading on Australian or American web sites. There is no comparison!
- Taken from the NHS web site: "Experts do not agree on whether the condition exists (reference: Chronic Lyme Disease), or whether the symptoms are actually caused by a different, undiagnosed problem." I leave this sentence with no comment. http://www.nhs.uk/Conditions/lyme-disease/Pages/Introduction.aspx
- If you suspect you were Lyme positive while pregnant (like my wife) I would presume your baby was born with the disease. Since Lyme disease can mimic the symptoms of autism there is every chance your child may have or will be "labelled" with the condition. I have no proof, but if you refer to MY OWN STORY I had described my son's behaving back in late 2015. He has had three Herxheimer reactions since the start of the 2016 New Year proving the therapy with bioresonance for Borellia validates the above claim.
- Huge proportion of Lyme patients (possibly as high as 50% or more) do not remember having been bitten by a tick. I believe GPs are taught that you need to be bitten by a tick in order for them to commission the blood test. So, simply demand the blood test if your symptoms cover majority of those listed on this web site!Taken from below link - "Tests should not be requested if there is no significant risk of a patient having LB". I'm not sure what it means exactly, but my interpretation would be - if you do not remember to be bitten or did not develop a rush or a bulls eye after being bitten by a tick - your chances of having the blood test while Lyme positive are probably 1 in 3 at best. It is again my personal opinion. https://www.gov.uk/government/publications/lyme-disease-diagnosis-and-treatment/lyme-disease-diagnosis-and-treatment
- Although infected with Lyme, a lot of those bitten by a tick (or other small creature) WILL NOT develop so called bull's eye or the rash associated with Lyme Disease - probably half of the cases. This DOES NOT mean you have not contracted the Lyme disease. This is perfectly normal - again, this is most likely the reason you will be given, not to be tested for Lyme.
- In one case the information on the NHS web site says that up to a third of patients would not remember to be bitten by a tick (how do they know how many would remember) and then latter NHS says: "Tests should not be requested if there is no significant risk of a patient having LB" - shocking! Proof below.The NHS also says that the rash does not mean you have Lyme. If you have rash it DOES mean you have Lyme. And how come below information is not on the main NHS web site? Why do you need to expand hidden links in order to learn one or two more things about Lyme Disease??? Most confusing, especially for somebody with Lyme disease and no cognitive functions! https://www.gov.uk/government/publications/lyme-disease-diagnosis-and-treatment/lyme-disease-diagnosis-and-treatment
- It is a similar principle to wearing gloves when dealing with a bleeding patient. Be very careful how you remove a tick from another person's skin / body. Use medical gloves and wash hands straight afterwards. There is no proof the disease cannot be transferred without skin penetration or digested. Make sure the tick disposal is with no squashing and with no access by human or any domestic animal to the tick remainings.
- In other European countries like Germany, Poland or Sweden (covered in large by forests comparing to the UK) - when all the Lyme symptom boxes are ticked off - even when the blood results are negative the treatment with antibiotics still commences, especially when the MRI scan for MS is negative. In those cases the patient has little to lose and the body's reaction to antibiotics (Herxheimer reaction) will tell you very soon whether you are Lyme positive or not. It is called a 'CLINICAL DIAGNOSIS'. Just quiz your GP or the consultant.
- Be wary - Lyme disease can trigger other conditions like Multiple Sclerosis. So, even if you've been diagnosed with MS, you may still be Lyme positive. And, without rooting out Lyme, your condition will deteriorate quite steeply. And this may be the reason the medications for MS may not be doing any good if you are Lyme positive - whether you take approved drugs or those in trial phases. See below link. I wonder why some 20 - 30% of patients experience no improvement... It also looks like bioresonance therapy, but I might be very wrong... http://patienttalk.org/multiple-sclerosis-nurses-trialling-a-drug-free-therapy-to-treat-ms-nerve-pain/
- The Lyme disease may also be transferred by other small creatures like - fleas, spiders and mosquitos. So you can never assume... - surprised? This obviously decreases your chances of ever being diagnosed with Lyme!
- And the most tricky question - since the presence of Borellia have been detected in patients' semen and urine, there is no evidence that Lyme cannot be sexually transmitted. Although there are no confirmed cases yet, there is no proof that it's not feasible. Unlike what the many web sites will tell you...
- This may be not applicable to you - however - there is a very strong claim that Lyme disease does not exist in Southern hemisphere (especially by the Australian government). I believe this is completely untrue! This is where I believe I got infected - Sydney / Australia. So if you have travelled to those countries South of the equator and have been bitten by a tick you may be Lyme positive as well.
- There is more and more scientific research diverting towards proving the thesis that most or possibly or neurological conditions like e.g.: MS, ME, Alzheimer, Autism are triggered by some form of a single or a combination of various pathogens. It is therefore important, that even when you do get diagnosed with one of those conditions, you may still be suffering (albeit unknowingly) from Lyme or other pathogen. Hence any type of treatment may be partially or completely ineffective.
- Lyme disease often develops in symbiosis with other pathogens. Having blood tests undertaken for Lyme without knowing about other co-infections can prove fatal. I believe that only bioresonance has the power to uncover other pathogens living in co-existence with Lyme in your body in the most efficient way possible - imagine having to be tested in a conventional way (blood or urine tests, etc) for hundreds of other pathogens - it's not going to happen.
- You could even be Lyme positive for many decades. Your immune system may be too strong for Lyme to flare-up in your body. However, often after physical injury, accident, trauma, surgery or deep emotional events, your immune system may shut down or lower its ability to control Lyme. This is often when Lyme bacteria "escapes" and you no longer control it. The problem is that, after years or even decades, you would not remember being bitten by a tick, would you? Try and think whether this may have happened in the past, but always assume you may have Lyme disease as a primary cause of your troubles.
- It is my believe and many others I should imagine with Post Infectious Lyme Disease, that the treatment with antibiotics is often ineffective and fails to fully cure the Lyme. There are very few Lyme specialists in the UK if any, and GPs knowledge on Lyme is thin. It is therefore with no surprise that the treatment fails often due to the choice of an antibiotic and an extremely short course of treatment. You may be lucky and become alleviated of Lyme but in many cases the symptoms will be back and may be even more severe. Please refer to my core supportive web link to seek recommendations on the duration of treatment with antibiotics. http://www.lymedisease.org.au/about-lyme-disease/late-stage-lyme-disease/Be aware - the prolonged use of antibiotics, if administered for many months or years, will devastate your body's immune system (critical in fighting Lyme) and may make it vulnerable to other microbes, fungi and infections. And you may still be Lyme positive months or years later... http://www.jhsph.edu/news/news-releases/2015/lyme-disease-costs-more-than-one-billion-dollars-per-year-to-treat-study-finds.html
- Additionally - some medical authorities (including NHS) describe what is known as "Post Infectious Lyme Disease". It is a term to describe the "persistent symptoms after a confirmed and TREATED infection". Please notice - NHS use the word "treated". That does not mean "cured". I do hope NHS can prove it to the public in the coming years that the treatment with antibiotics does cure the condition 100%. If you are told the above and stand by the NHS views, we wish you at PEEL a full and speedy recovery. http://www.nhs.uk/Conditions/Lyme-disease/Pages/Introduction.aspx
- The NHS web site also states: "Experts do not agree on whether the condition exists (Chronic Lyme Disease), or whether the symptoms are actually caused by a different, undiagnosed problem." I don't believe I need to add any comment. Perhaps it would be best to wish those experts to go through the HELL we've been through ourselves???
- The list of Lyme co-infections is much longer than the one shown on NHS web site - please refer to latter parts of this web site in analysing what could be contributing to your health problems.
- There is a high probability that if you have a heart pace maker it is as a result of Lyme infection. You can also suffer a heart attack as a direct result of Lyme Disease. Not many A&E medical professionals do know that. When I was taken by an ambulance to A&E in April 2016 with a suspected cardiac arrest (that was the point in time I didn't know this fact) I discovered later that none of the doctors linked these two facts together. So, if you know you have Lyme disease and you suddenly feel like you may be having a hear attack, do not think twice and head to your nearest A&E to have a check up. http://danielcameronmd.com/autopsy-study-reviews-cases-due-to-sudden-cardiac-death-from-lyme-disease/
- Finally - If you have also read on the NHS web site: "Be wary of internet sites offering alternative diagnostic tests and treatments that may not be supported by scientific evidence". Here is our scientific evidence provided by the VEGA-TEST Specialist Dr Vladimir Volovik - a scientific proof showing pathogens under the microscope while bioresonance is applied: http://www.doctorvolovykv.com/419527991
- You cannot disregard the possibility that lyme or other serious parisites could be transferred via the blood in under cooked meat (e.g. lamb or venison) eaten from an infected animal.
- I almost forgot. The treatment with antibiotics that you will be administered by the NHS stipulates the treatment duration of 4 weeks as the longest. Well - there are several things I need to highlight here and it is not what I think.First thing - the duration - is totally inadequate. If you refer to my Lyme diagnosis letter appended below, as well as to the below link - it is a MUST to continue with the treatment for several months after your symptoms are gone.Second thing - the antibiotics - the selection proposed by NHS. We give no advise on treatment with antibiotics, but I would like to attract your attention to my medical letter as well as to below web site again and to the fact that because there are 300 different strains of Lyme, therefore the selection of antibiotics proposed by NHS or any other medical professional may fail all together.Third thing - many antibiotics will fail to reach those deep places inside your body where Lyme has hidden inside, hence they may do little if anything in eradicating the problem.Forth thing - the reproduction of Lyme (unlike many other pathogens where this period is just a few hours) is approximately 3-4 weeks. During each such cycle of reproduction the antibiotics will wipe out only a certain percentage of the overall number of spirochetes (15-20%). So do your arithmetics. It takes probably 4 to 6 cycles to bring down the number of Lyme spirochetes to the level where your body's immune system can cope with defeating the disease.Summing up - the critical thing in treatment with antibiotics is - the worse Herxhaimer reactions you experience (read all about it in the latter parts of this web site), the better working of the antibiotics or bioresonance therapy. If you experience no Herxhimer - the treatment is simply not working. This obviously may depend on the level of infection your body has been at when commencing the treatment. However, if you feel no improvement while on antibiotics, you should seek change of your antibiotic or simply combine another one with the one you are prescribed. You may refer to my medical letter, which says how or where to start with antibiotics, should you choose this method as the way of treatment. http://www.lymedisease.org.au/about-lyme-disease/late-stage-lyme-disease/(PDF) FND Diagnosis Letter
DID YOU KNOW?
LYME STATISTICS (TICK RELATED ONLY) - USA - 300,000 cases each year, Germany - 80,000 cases each year. UK - NHS estimate 2000 - 3000 cases each year. How does it add up? If only 20,000 - 30,000 of Lyme cases were presumed in the UK each year then over 4 decades the total of people living unknowingly with Lyme disease in the UK would exceed 1 MILLION. And this number would not even account for STDs and congenital infections!
Thus far we have not identified a single person with formally diagnosed neurological condition - e.g. MND, MS, Alzheimer, Parkinson, FND - who would not be Lyme Complex positive. It is our view Lyme Complex is the root cause of all neurological diseases.
Lyme Disease is the most serious of all sexually transmitted diseases. In our research we have identified Lyme Disease is passed from male to female partners. We have not identified any cases of this STD transmitted in the opposite direction which does not mean it is impossible.
The above fact explains why the ratio of women to men amongst all neurological diseases is approximately 3 to 1.
Lyme Disease is transferred through congenital means as well. So if you were Lyme positive during pregnancy your children are almost guaranteed to have Lyme as well. This may explain why ADHD or Autism numbers are on huge rise.
ELISA test - the blood test for detection of Lyme Disease is probably as inaccurate as 8-12%. The truth is - nobody knows how accurate this test really is. And for that reason Lyme Complex have been denied to be linked as a root cause to all neurological conditions. Lack of testing is another serious issue and injustice to those patients.
Practically all GPs and neurologist in the UK think that if your Lyme ELISA test results are negative you do not have Lyme Disease. Hence you have to be labelled with another medical condition. In other less developed countries (e.g. Poland) Doctors know this fact and often complete clinical diagnosis to confirm Lyme Disease. In the UK clinical diagnosis is called FND - Functional Neurological Disorder. In our view there is no such thing. FND diagnosis is simply a death sentence.
To have your ELISA test commissioned by your GP you need to remember to be bitten by a tick - NHS Guidelines. The problem is - majority of Lyme patients do not remember being bitten by a tick. Another half of those who remember will never go on to developing the rash or a bulls eye confirming infection with Lyme Disease. And these are only about a third of all cases. The other two thirds are STD and congenital infections. Your chances of being confirmed Lyme positive by NHS are in our view less than 2%.
We know this fact from our research. Additionally - there is a growing scientific evidence that Alzheimer Disease and many other neurological conditions could be triggered by various pathogens, in particular: Chlamydia Pneumonia, CMV, Herpes Virus and the main suspect - Borrelia (Lyme Disease). Not surprisingly - the funding for those researchers has been ceased by obvious grant providers. There is no need to comment any more on this issue...
Are tick the only creatures carrying the disease? Wrong! Mosquitoes, spiders, fleece and many other ectoparasites also carry this deadly disease.
So - what is our evaluation of how many people are positive with Lyme in the UK. Well - double the number of tick related cases up to two million. Double that to account for STDs. And add another 2 million to cover congenital cases. And the number should be 6-7 MILLION. If you compile all neurological diseases, fibromyalgia, ME and unreported cases - then 2 + 2 = 4. In our view - at least 1 in 10 people is Lyme positive and these numbers will double very quickly over the next couple of decades.
Dirofilaria Immitis, Dioctophyne Renale and Trypanosoma Cruzi are standard Lyme co-infections confirmed in all our cases thus far. Any of these parasites will protect Borrelia and other Lyme co-infections from eradication. The starting point of treating Lyme Complex should be by removal of these parasites. This can only be done with Vega Test and Rifing.
The final question - do antibiotics work in curing Lyme? Well - see our Lyme Complex Table and answer this question yourself...
LYME DISEASE IS THE BIGGEST GLOBAL PANDEMIC AND IT IS UNSTOPPABLE!!!